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Our beneficiary

 

 

Jayden Piacenza


Our beneficiary this year is fifteen month Jayden Piacenza, daughter of Mike and Christine Piacenza of Bloomfield, NJ. Jayden has a disorder that causes Craniosyntosis.

What is Craniosynostosis (CRAY-nee-o-SIN-os-Toe-sis)

To allow for rapid brain growth, your baby's skull cap is made up of five bones, held together by a fibrous-like material called "sutures". Normally, they remain open as long as the brain grows, which gives the brain room needed to grow in all directions.

If any of the sutures close or fuse before the brain has finished growing, the condition known as craniosynostosis occurs. Other terms used to describe this problem include: synostosis, or cranial stenosis. Premature closure can take place before birth or at any time until the brain stops growing.

Because the brain is growing normally, it will take the path of least resistance which will result in a misshapen head or face.

Her form is known as cruesons (pfieffer) disease. Jayden's skull began to grow up in a cone shape, which could only be corrected with surgery. Basically the bones in her face and skull needed to be pushed back to make room for 'normal growth'. Unfortunately, the eyes were not totally pushed with them, thus they bulge out of the sockets. She will soon be going in for surgery to correct this defect.

 

 

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